Things have been busy around here with all the doctor appointments but so thankful that most of them are follow ups and check ups. So here are the reports:
Carter: The calcifications are smaller than they were in the last scan. No need for a follow up scan unless they start causing problems in his kidneys. It is not known if they will just keep getting smaller or move and decide to pass like a kidney stone (let's hope that is not the case) - so it's just a wait to see if they cause any problems.
Riley - Dr. Miller said to see him in one year. There is still that one spot he is still looking at but until Riley starts verbalizing "ouchee" and that area is bothering him or Dr. notices a change in the site - we are doing nothing. Riley does have little suture holes near his reinastimosis site that gets red every once in a while. They are like earring holes that get dirt in them. He can "fix" them if he is sedated and only takes a few minutes. So the next time he is sedated for a procedure, he is going to pop in and "fix" it. Lets hope it is not too painful.
They seem to be doing well overall and Carter has finally learned a new skill besides throwing toys. He decided to put them together and is now learning how to activate toys - yippee! He is so dangerous we he gets in a throwing mood which is not very controllable at this point so stopping him is very hard when "no" means nothing to him at this point. But we are so excited that he is learning how to do this! Riley is learning how to throw a ball and roll it back and forth with us. That is something new and he thinks it is fun.
I promise to post pics soon. Just trying to catch up on everything and have about 400 pics on my memory card that i need to download. Love the ability to see pics when taken but hate downloading them to the computer.
Saturday, August 8, 2009
Sunday, August 2, 2009
What's Going On
No a whole lot going on around here lately except enjoying the wonderful rain for the past week. They boys love to go outside now and when its raining they just beat on the window like lets go! Hard to keep them entertained when all they want to do is go outside.
During the month Carter had a swallow function study done. We were able to get him to swallow about 4 times and it was good enough to show that he can swallow fine and is not aspirating. We pretty much had a good idea that he was not but since he has not swallowed very much since Jan of 2008 we thought it would be a good idea. Thursday we went and had a renal ultrasound. We are awaiting these test results and hope to hear something by Tuesday. This was a follow up to a scan we had done in the NICU that should he had calcium deposits in his kidneys from the TPN. We started new speech and OT therapy and hope that we can get Carter to liking food soon. He does have minor allergy issues which have required us to try numerous allergy meds. Right now we are on a nose spray but while we were on liquid meds we were able to get him to take more by mouth which has been a bust lately. We may consider trying periactin to help boost his appetite but still toying with the idea.
Riley has a few appointments coming up. The one we can't hardly wait to get to is the eye doctor. His glasses are becoming too small again (only 6 months old) and he does not want to wear them as much since they hurt his face. Only two more weeks til this appointment! Lets hope they stay in one piece til then.
The Cribs...it only took a week and we got the new ones around July 12. Took apart the old cribs and returned them to Target. After about twenty minutes, got my store credit on the full purchase price of the cribs. Once you explain that you don't need a receipt and it says it on Target's website that recalled items do not need one - you are good to go. Unfortunately, we did travel their on a weekend where staff was limited but the woman behind the counter just started to do the return as normal and once the code was entered the screen politely explained to her what exactly she needed to do to refund my money. The best Target return I ever did except for the fact I had to get store credit.
I will post pics soon. This is the second day I have had the internet back up a running. The storms last week crippled my internet connection and prior to that my laptop when kaplooee. Thanks to my brother for getting me back up and running.
During the month Carter had a swallow function study done. We were able to get him to swallow about 4 times and it was good enough to show that he can swallow fine and is not aspirating. We pretty much had a good idea that he was not but since he has not swallowed very much since Jan of 2008 we thought it would be a good idea. Thursday we went and had a renal ultrasound. We are awaiting these test results and hope to hear something by Tuesday. This was a follow up to a scan we had done in the NICU that should he had calcium deposits in his kidneys from the TPN. We started new speech and OT therapy and hope that we can get Carter to liking food soon. He does have minor allergy issues which have required us to try numerous allergy meds. Right now we are on a nose spray but while we were on liquid meds we were able to get him to take more by mouth which has been a bust lately. We may consider trying periactin to help boost his appetite but still toying with the idea.
Riley has a few appointments coming up. The one we can't hardly wait to get to is the eye doctor. His glasses are becoming too small again (only 6 months old) and he does not want to wear them as much since they hurt his face. Only two more weeks til this appointment! Lets hope they stay in one piece til then.
The Cribs...it only took a week and we got the new ones around July 12. Took apart the old cribs and returned them to Target. After about twenty minutes, got my store credit on the full purchase price of the cribs. Once you explain that you don't need a receipt and it says it on Target's website that recalled items do not need one - you are good to go. Unfortunately, we did travel their on a weekend where staff was limited but the woman behind the counter just started to do the return as normal and once the code was entered the screen politely explained to her what exactly she needed to do to refund my money. The best Target return I ever did except for the fact I had to get store credit.
I will post pics soon. This is the second day I have had the internet back up a running. The storms last week crippled my internet connection and prior to that my laptop when kaplooee. Thanks to my brother for getting me back up and running.
Sunday, July 19, 2009
Heartfelt Sympathy
Please pray for the family of baby Kyle who went on the be with the Lord on Saturday, July 11th. My thoughts and prayers go out to these to families as they deal with the passing of their son, grandson and nephew.
The news of what this family had to deal with was all to close to home for me. Friday was the two year anniversary of the day we had to decide the same thing for our son, Lanny. The privacy, holding our son for the first and last time, and the removal of all the tubes, IVs, probes, etc., all to say goodbye and we will meet again soon.
As difficult as the decision was for us, my heart goes out to this family. It is not easy hearing that your son has no chance of life. Many families have to face difficult decisions everyday, but this is one no one should have to make.
Please keep this family in your prayers as they deal and cope with the loss of their son, Kyle.
The news of what this family had to deal with was all to close to home for me. Friday was the two year anniversary of the day we had to decide the same thing for our son, Lanny. The privacy, holding our son for the first and last time, and the removal of all the tubes, IVs, probes, etc., all to say goodbye and we will meet again soon.
As difficult as the decision was for us, my heart goes out to this family. It is not easy hearing that your son has no chance of life. Many families have to face difficult decisions everyday, but this is one no one should have to make.
Please keep this family in your prayers as they deal and cope with the loss of their son, Kyle.
Monday, July 6, 2009
Go Kyle Go
Please pray for Kyle and his family as he continues to recover. He has been in the hospital since he was born and has two heart surgeries since them. You can read his story here.
Recall This
Don't you ever wish you could call up a company and tell them "I recall you!". Well I wanted to say a little more but the company, Simplicity, has actually stopped doing day to day operations and answering their phones.
On Friday morning, prior to assembling the boys birthday gift (a whole other post), I turn on the computer and there it is.....all Simplicity cribs have been recalled by the http://www.cpsc.gov/. I knew it was coming. All of their other cribs have been recalled so why should ours be any different. As parents you fear everytime you pull up this website and check it monthly to see what purchases you have made are now endangering your child. You feel mad, scared and want to scream at the company - how in the world could you produce such a product!
Well. Now to make the decision - what to do? My children are no where near transitioning to a toddler bed so, we are buying new cribs - actually already purchased and waiting for them to arrive. You can't just run the the store and buy a new one, most stores have limited stock and most of them are drop side cribs. Well, I'm not buying another one of those due to the fact it was the reason ours were recalled in the first place. So we wait..... There are no alternate sleeping arrangements with twins until these arrive so we pray that the new ones come quickly. So now what about the old ones?????
Purchased at Target! I pulled up the website, called customer relations and since this is a recalled item, I can return it, no receipt required. We will see about that but that is what the lady said. I got her name if I have any problems. Will let you know how it goes for those of you who may face this similar dilemma- lets hope it does not get ugly.
On Friday morning, prior to assembling the boys birthday gift (a whole other post), I turn on the computer and there it is.....all Simplicity cribs have been recalled by the http://www.cpsc.gov/. I knew it was coming. All of their other cribs have been recalled so why should ours be any different. As parents you fear everytime you pull up this website and check it monthly to see what purchases you have made are now endangering your child. You feel mad, scared and want to scream at the company - how in the world could you produce such a product!
Well. Now to make the decision - what to do? My children are no where near transitioning to a toddler bed so, we are buying new cribs - actually already purchased and waiting for them to arrive. You can't just run the the store and buy a new one, most stores have limited stock and most of them are drop side cribs. Well, I'm not buying another one of those due to the fact it was the reason ours were recalled in the first place. So we wait..... There are no alternate sleeping arrangements with twins until these arrive so we pray that the new ones come quickly. So now what about the old ones?????
Purchased at Target! I pulled up the website, called customer relations and since this is a recalled item, I can return it, no receipt required. We will see about that but that is what the lady said. I got her name if I have any problems. Will let you know how it goes for those of you who may face this similar dilemma- lets hope it does not get ugly.
Tuesday, June 23, 2009
HAPPY BIRTHDAY BOYS!
As you can see by the ticker.....We are 2! What a milestone and it has been a busy two years. We are so blessed and thankful of how well our boys are doing and enjoy watching them grow and learn everyday.
We did have a Wow Wow birthday party for them on Saturday. I will post more on that later. Still recovering from all the food, cake and the 30+ people who came to wish the boys a happy birthday. Here's a peek of the cake I made for them:
To Carter and Riley - Happy Birthday and we look forward to many more wonderful days ahead! Love Mom and Dad.
Monday, June 22, 2009
San Antonio Stroll
Tower of the Americas
Don't you just love San Antonio. So much history to see and you can't visit without seeing the ALAMO! Kevin and I were able to get away for 5 days earlier this month and it was nice to get away. Thank you to all of our family and nurses that helped out with the boys to allow us to get away. A special thanks to my mom for staying here with the boys all week!
We enjoyed San Antonio and the riverwalk for a few days. This was only our second time away from the boys and the first time we were gone longer than 24 hrs. They were not too happy the first couple of days since we were gone but enjoyed having their Nana and Granny dote on them.
We ate a lot of good food and enjoyed sleeping in. We always visit our favorite eating place, Mi Tierra's and we also went up to the top of the Tower of the Americas and had a nice dinner. It was neat to sit atop of the tower as it rotated around the city while we ate. What a nice time we had. The Riverwalk was not too crowded since we went during the week and we got to enjoy walking around seeing all the stuff that has been added since we were there last. I did manage to squeeze in a much needed swedish massage! Oh it was wonderful!
We ended our trip in Fredericksburg and walked around to the shopping district and ate more food! After walking around the riverwalk we did not do much shopping but did enjoy some wine tasting and a visit to the Fredericksburg brewery. It was nice to be able to sit and eat without having to corral two little toddlers but we sure missed them.
Thanks to all that helped out so we could get away, get refreshed and get some much needed sleep. Thanks Mom - I love you!
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