Happy Holidays everyone. Many of you are wondering.......What have we been up too? Well, alot. It's been busy, busy, busy around here and still trying to catch up on lots of stuff so I will try to keep it at a minimum.
October.... The lovely ear infections returned. As always with the start of the winter season, a cold creeps into the house. Riley gets sniffly and sneezy and of course, ear infection. A week later, Carter is at the doctors office with a ear infection as well. As the dr. always reminds us, ear infections are not, I repeat, NOT contagious. Well, they are not but the cold that probably started it all is and it never fails once one gets it the other does too. Of course, that wasn't the half of it.
Kevin was working nights, 6 days, 12 hr shifts during this time and while I taking Riley to the dr., an 18 wheeler was shredding a tire while rounding the corner in the opposite direction and huge pieces were hurling at my SUV. Then I hear a SMACK. I keep driving and inspect the car at the doctors office as no warning lights came on afterwards. I look at the grill, and I see the hole. Oh great. Just what I needed. Luckily, the windshield was not broken but the grill had to be replaced to protect the radiator from any oncoming debris in the future.
November, I thought this would be a calm month but not quite. Riley starting running a fever on a Thursday night so I decided to go ahead and take him in on Friday. I did not want to wait it out over the weekend since I knew something was wrong just didn't know what. Went in and the ears were fine, the throat, a little red. So after a little test, it came back - Strep!?! I couldn't believe it. The kids go nowhere so we must have brought it in and did not know it. So Riley gets his scrip and so does Carter for preventative measures. Carter does not eat but puts every toy, cup and what not in his mouth so more than likely he would of come down with it soon enough. So, another month of sleeping with Riley and keeping Carter calm and in his crib so he can eat at night. The boys managed to get over the strep and stayed well for the remainder of the month to get their 1st dose of the H1N1.
This wasn't the half of it. To keep it short, here's the list: DVR had to be replaced, Microwave stopped working and had to be replaced, coffee maker stopped making coffee (only 2 months old and it happened on a MONDAY!), lost our internet connection for 15 days, carpet cleaner holding tank broke while cleaning carpets and I lost lots of sleep that I desperately needed.
December, has started of relatively calm and it is going to stay that way. I did have to have a tire fixed due to a SLOW leak which took a while to find but thank goodness they did.
The boys had a wonderful Thanksgiving spending it out of the house this year. Of course, we were chasing them all over til the sleep monster finally took over but it was a great day. They are beginning to make alot more sounds and noises. Riley is pointing out things on flash cards and trying to say what they are. Carter is starting to make more noise as well and has been immitating us more which is so awesome. One of the songs I sing to them has a pirate the goes "aaaargh" and everytime I get to the line they both say it. Riley was taking his bottle the other night while I was singing it to Carter and he was pulling his bottle out of his mouth to make the sound. kinda gurgled since he had milk in his mouth but it was so cute.
One of our favorite DVD's is the Leap Frog Letter Factory. They are beginning to repeat sounds of the letters. Every time the A starts and goes " the A says AHHH they both scream AHHH!" It is so cute and love that their little personalities are still as different as night and day. Most of the day I try to keep Riley from beating up on Carter.
We do have to thank Nana and Papa for keeping our little 2 year olds overnight about a week ago. The boys have not spent a night away from the house since they were born. We have been away from them but never in our house with peace a quite for over 2 years. We managed to get most of the christmas shopping done and get some things done around the house the next day. It was a nice, much needed break and we can't thank them enough.
I will post some new pics soon as well as more things that the boys are doing. Just wanted to let everyone know that we are alive and things are going well.
Friday, December 11, 2009
Tuesday, November 10, 2009
Carter's Big Day
approx. 25 lbs and 33 inches tall
Been a little busy with the boys lately so I did not get a chance to blog about the day Carter came home. Two years ago on November 5th, Carter came home and our world changed forever. It was hard enough just to adjust to Riley coming home and we received a call stating "Carter is ready to come home - uh TOMORROW". We were not prepared for his homecoming as we fully expected him to be in the NICU at least a month after Riley came home. So we were excited when we got the call, as I was so devasted to have left him there, us being over an hour away from the hospital.
Carter at Birth 6/23/07 - My first born. Notice the A on the cap.
1 lb 6 oz and 12 inches
Carter prior to coming home (O2 removed temporarily for pic)
Where's Carter? Taken about 10 days after coming home.
together again. Luckily, they only entangled themselves with all the O2 tubing and apnea wires and not each other but there were days we had to turn off the machine just to get all the wires untangled.
Kevin with the boys - they are not so little anymore.
Kevin with the boys - they are not so little anymore.
One of my favorite pics of "my buggy"
It took us a while to get everything together and to set up times to meet everyone at the hospital to make sure we got all of his equipment to go home with. Yep, he came home with all the same equipment Riley did. That meant our house had two of everything - O2 concentrator, apnea monitor, pulse ox, oxygen tanks, etc. I think at one time over the course of everything we had 4 large oxygen tanks and 8 small ones. Why so many? The company that the hospital set us up with forgot we live in the sticks and that the company was in North Dallas. So they made sure we had extras of everything so they did not have to make as many trips for minor things. Good
plan, I just didn't know where to put all of this lovely stuff.
I did finally manage to learn how to load the car and pack their bags for any doctor trips over the course of these few months as there were many. That double stroller can hold alot if you pack it right.....2 babies, check; 2 apnea monitors, check; 2 O2 tanks, check, Carters bag, check, Rileys bag, check; Carters backpack with feeding pump, check; and my sanity - oh I left that at home.
We were never so thankful to be out of the hospital and in our own home. Lack of sleep took its toll on us in the days ahead but we enjoyed every minute of it. Carter adjusted to home life very well. The boys shared a bed in the living room from this time until March of '08. That was when they decided it was not "cool" to sleep together anymore. They were recovering from RSV at the time and waking each other up. Not "cool" for mom either. We were worried with all the moving around that Riley would find Carter's NG tube and yank it out. We had already been down that road with Carter once and I didn't want a repeat performance.
While Carter still does not eat by mouth we are making progress with his sensory issues to put food related items in his mouth. Just the other day he licked the salt off of a McD's french fry! We were so excited considering most of his intake over the past year by mouth has been water. Now just to take a bite would be a wonderful milestone. I don't see it happening anytime soon but who knows. Right now he is teething a 3 year molar which is unusual since Riley cut almost all of his teeth first. I will be soooooo glad when this teething thing ends. It seems like 1 1/2 years of non stop teething. UGH!
Overall, we are so blessed to have them here and to watch them grow each and everyday. The new things they do a true milestones to us as they may be small to others. No milestone for us is too small and we take each day as it comes. Usually a tornado of 2 year olds running through the house with toys in tow and we just SMILE!
Tuesday, October 20, 2009
2 Years Ago.... Today
Riley Today
approx 23lb and 32 inches
Riley at Birth 6-23-2007
1 lb 7.8 oz. 12 1/4 in.
Our First Photo all together before Riley came Home 10/22/07
Riley's First Photo without any "stuff"
(only removed temporarily for photo)
Riley getting ready to roll out the door.
Riley HOME 5 days later.
Carter and Riley Together
What a day this was. I can still remember some of the details like they were yesterday. After 120 days in the NICU, Riley was ready enough to come home. I remember how excited we were and how terrified we were at the same time. The hardest thing was leaving Carter. I had been at the NICU everyday except for maybe 10 days of the 120 days. Some days were good, some were bad and some we just don't want to think about.
You always hear the "stories" of my baby was a preemie. And yes, many children are born early. Then there are Micropreemies, which my children are. It's hard to think that they were so little when they were born, not knowing if they would even survive the first month. As the months past, the what if factor always remained, especially with Riley. Having 5 surgeries within those 120 days were terrifying.
So here we are, loading up the car with all of Riley's stuff including the o2 tanks, o2 concentrator, pulse oximeter and apnea monitor. I remember thinking in the car on the way home about all the equipment and hoping that nothing would happen. I don't think I slept much his first night home. He still was eating every 3 hours anyway so not much sleep. We kept him confined to the living room since that is where is was easiest to set up all the equipment. All the cords and tubes were long enough to move around the room with ease and lay on the recliner when Riley decided to take a nap.
His first doctor appt... it took me twenty minutes just to load the car. When we travelled, we travelled with most of the equipment - the apnea monitor and o2. That was enough and we also carried spare tanks in the car for emergencies.
To look back at the pictures now, I am truly blessed and fortunate on how far we have come and how much he has grown.
Sunday, August 30, 2009
Pic o' Rama
Carter - It's still my turn on the Roller coaster
(This is one of their favorite toys they got for their birthday Thanks Aunt Suz)
Carter
Carter - No Pizza - thanks though
Carter
Riley - These are mine now!
Riley - Don't you love my Ruby Red Heels?
Riley - Eating with Papa and Uncle G.
Riley - My New Specs
Riley to Carter - What are you doing?
Riley - I love all shoes - especially Moms
Carter - Stop that flashing I just woke up!
Carter - Love my swing
What is Normal?
Ever ponder the thought..just want things to get back to normal? What is normal exactly? The life we once had, the life we hoped it would be or the life that is in fact reality? For all of us, there are varying degrees of normal and the reality is nothing is ever really normal. I read a blog earlier that stated "the only thing that is normal is the setting on the dryer". Never really thought about it like that but it makes sense.
Where am I going with this? Well, we went to a family reunion earlier today and everyone was so excited to see the boys. We don't get out that often with both of them so it was interesting to see them interact with people they haven't even met. This went very well considering their limited social interaction. Riley ate as well as to be expected and Carter ate as well (by the tube) and fell asleep in the stroller. Carter is not that graceful to be walking around and eating at the same time so I strap him in to feed him. Curiosity peaked some, especially the little ones, and trying to explain it in the simplest of terms can be rather difficult but I think they get the point - I hope. We try to seclude him as much as possible while he is eating as not to upset the other children but the curiosity gets the best of them and most are pretty calm about it.
Neither one seemed to have met a stranger and went to everyone that wanted to hold them but they were so curious of their surroundings that they could not sit still for long. Carter slept the most of the time we were there and Riley was into everything. Everything is an understatement to what this child can do. The word NO is not part of his vocabulary. I wish Carter would have stayed awake longer but the sleepy genie took over.
As we all know, our boys are developmentally behind. We work with them everyday and soon the day will come when others will consider them "normal" and in line with their peers. But for now we are normal, as normal as we can be considering all that we have gone through to get to this point. Fortunate that they are here, they are thriving and in good health.
It was a great day and we are getting them out and about more often as too not overstimulate them too much. We are enjoying the nice cool front here in August, a rarity during this time of the year, and getting them outside more to play.
On the medical front, Riley has his new glasses! I went with the regular style this time instead of the ear pieces that wrap around his ear for easy removal. That is the new thing learning how to take them off and then put them back on properly. Still working of the back on part. He is having a time adjusted to the new prescription since is has changed a good bit since last year. Changed so much so that his lenses are now special order. Special Order meaning additional cost - Woohoo. Not that I am complaining, he needs them to see. He can only see about 6-12 inches in front of him clearly and when he is not wearing them, he trips over things, runs into walls etc. As far as how bad, well - right eye: from -5.00 to a -8.50 and the left eye: -7.00 to a -10.00. He is still having issues with his left eye turning in and if things don't progress in the next 4 months then we will have to begin some patching to strengthen the eye muscles. But that's in 4 months.
Carter is doing well also. Not wanting to drink a whole lot by mouth so we are going to start trying the periactin soon. Lets hope this works and helps Carter learn that food in mouth is okay. He puts toys in his mouth just fine until it is accompanied with a smell. Carter goes to the eye doctor next week and I fully expect the Dr. to put him in glasses. Last year, he could see about 4 feet clearly but I feel that his vision has decreased since then as he only concerns himself with his surroundings and nothing across the room unless it's an open door.
Enjoy the pics coming up in the next post.
Where am I going with this? Well, we went to a family reunion earlier today and everyone was so excited to see the boys. We don't get out that often with both of them so it was interesting to see them interact with people they haven't even met. This went very well considering their limited social interaction. Riley ate as well as to be expected and Carter ate as well (by the tube) and fell asleep in the stroller. Carter is not that graceful to be walking around and eating at the same time so I strap him in to feed him. Curiosity peaked some, especially the little ones, and trying to explain it in the simplest of terms can be rather difficult but I think they get the point - I hope. We try to seclude him as much as possible while he is eating as not to upset the other children but the curiosity gets the best of them and most are pretty calm about it.
Neither one seemed to have met a stranger and went to everyone that wanted to hold them but they were so curious of their surroundings that they could not sit still for long. Carter slept the most of the time we were there and Riley was into everything. Everything is an understatement to what this child can do. The word NO is not part of his vocabulary. I wish Carter would have stayed awake longer but the sleepy genie took over.
As we all know, our boys are developmentally behind. We work with them everyday and soon the day will come when others will consider them "normal" and in line with their peers. But for now we are normal, as normal as we can be considering all that we have gone through to get to this point. Fortunate that they are here, they are thriving and in good health.
It was a great day and we are getting them out and about more often as too not overstimulate them too much. We are enjoying the nice cool front here in August, a rarity during this time of the year, and getting them outside more to play.
On the medical front, Riley has his new glasses! I went with the regular style this time instead of the ear pieces that wrap around his ear for easy removal. That is the new thing learning how to take them off and then put them back on properly. Still working of the back on part. He is having a time adjusted to the new prescription since is has changed a good bit since last year. Changed so much so that his lenses are now special order. Special Order meaning additional cost - Woohoo. Not that I am complaining, he needs them to see. He can only see about 6-12 inches in front of him clearly and when he is not wearing them, he trips over things, runs into walls etc. As far as how bad, well - right eye: from -5.00 to a -8.50 and the left eye: -7.00 to a -10.00. He is still having issues with his left eye turning in and if things don't progress in the next 4 months then we will have to begin some patching to strengthen the eye muscles. But that's in 4 months.
Carter is doing well also. Not wanting to drink a whole lot by mouth so we are going to start trying the periactin soon. Lets hope this works and helps Carter learn that food in mouth is okay. He puts toys in his mouth just fine until it is accompanied with a smell. Carter goes to the eye doctor next week and I fully expect the Dr. to put him in glasses. Last year, he could see about 4 feet clearly but I feel that his vision has decreased since then as he only concerns himself with his surroundings and nothing across the room unless it's an open door.
Enjoy the pics coming up in the next post.
Saturday, August 8, 2009
What's Up Doc?
Things have been busy around here with all the doctor appointments but so thankful that most of them are follow ups and check ups. So here are the reports:
Carter: The calcifications are smaller than they were in the last scan. No need for a follow up scan unless they start causing problems in his kidneys. It is not known if they will just keep getting smaller or move and decide to pass like a kidney stone (let's hope that is not the case) - so it's just a wait to see if they cause any problems.
Riley - Dr. Miller said to see him in one year. There is still that one spot he is still looking at but until Riley starts verbalizing "ouchee" and that area is bothering him or Dr. notices a change in the site - we are doing nothing. Riley does have little suture holes near his reinastimosis site that gets red every once in a while. They are like earring holes that get dirt in them. He can "fix" them if he is sedated and only takes a few minutes. So the next time he is sedated for a procedure, he is going to pop in and "fix" it. Lets hope it is not too painful.
They seem to be doing well overall and Carter has finally learned a new skill besides throwing toys. He decided to put them together and is now learning how to activate toys - yippee! He is so dangerous we he gets in a throwing mood which is not very controllable at this point so stopping him is very hard when "no" means nothing to him at this point. But we are so excited that he is learning how to do this! Riley is learning how to throw a ball and roll it back and forth with us. That is something new and he thinks it is fun.
I promise to post pics soon. Just trying to catch up on everything and have about 400 pics on my memory card that i need to download. Love the ability to see pics when taken but hate downloading them to the computer.
Carter: The calcifications are smaller than they were in the last scan. No need for a follow up scan unless they start causing problems in his kidneys. It is not known if they will just keep getting smaller or move and decide to pass like a kidney stone (let's hope that is not the case) - so it's just a wait to see if they cause any problems.
Riley - Dr. Miller said to see him in one year. There is still that one spot he is still looking at but until Riley starts verbalizing "ouchee" and that area is bothering him or Dr. notices a change in the site - we are doing nothing. Riley does have little suture holes near his reinastimosis site that gets red every once in a while. They are like earring holes that get dirt in them. He can "fix" them if he is sedated and only takes a few minutes. So the next time he is sedated for a procedure, he is going to pop in and "fix" it. Lets hope it is not too painful.
They seem to be doing well overall and Carter has finally learned a new skill besides throwing toys. He decided to put them together and is now learning how to activate toys - yippee! He is so dangerous we he gets in a throwing mood which is not very controllable at this point so stopping him is very hard when "no" means nothing to him at this point. But we are so excited that he is learning how to do this! Riley is learning how to throw a ball and roll it back and forth with us. That is something new and he thinks it is fun.
I promise to post pics soon. Just trying to catch up on everything and have about 400 pics on my memory card that i need to download. Love the ability to see pics when taken but hate downloading them to the computer.
Sunday, August 2, 2009
What's Going On
No a whole lot going on around here lately except enjoying the wonderful rain for the past week. They boys love to go outside now and when its raining they just beat on the window like lets go! Hard to keep them entertained when all they want to do is go outside.
During the month Carter had a swallow function study done. We were able to get him to swallow about 4 times and it was good enough to show that he can swallow fine and is not aspirating. We pretty much had a good idea that he was not but since he has not swallowed very much since Jan of 2008 we thought it would be a good idea. Thursday we went and had a renal ultrasound. We are awaiting these test results and hope to hear something by Tuesday. This was a follow up to a scan we had done in the NICU that should he had calcium deposits in his kidneys from the TPN. We started new speech and OT therapy and hope that we can get Carter to liking food soon. He does have minor allergy issues which have required us to try numerous allergy meds. Right now we are on a nose spray but while we were on liquid meds we were able to get him to take more by mouth which has been a bust lately. We may consider trying periactin to help boost his appetite but still toying with the idea.
Riley has a few appointments coming up. The one we can't hardly wait to get to is the eye doctor. His glasses are becoming too small again (only 6 months old) and he does not want to wear them as much since they hurt his face. Only two more weeks til this appointment! Lets hope they stay in one piece til then.
The Cribs...it only took a week and we got the new ones around July 12. Took apart the old cribs and returned them to Target. After about twenty minutes, got my store credit on the full purchase price of the cribs. Once you explain that you don't need a receipt and it says it on Target's website that recalled items do not need one - you are good to go. Unfortunately, we did travel their on a weekend where staff was limited but the woman behind the counter just started to do the return as normal and once the code was entered the screen politely explained to her what exactly she needed to do to refund my money. The best Target return I ever did except for the fact I had to get store credit.
I will post pics soon. This is the second day I have had the internet back up a running. The storms last week crippled my internet connection and prior to that my laptop when kaplooee. Thanks to my brother for getting me back up and running.
During the month Carter had a swallow function study done. We were able to get him to swallow about 4 times and it was good enough to show that he can swallow fine and is not aspirating. We pretty much had a good idea that he was not but since he has not swallowed very much since Jan of 2008 we thought it would be a good idea. Thursday we went and had a renal ultrasound. We are awaiting these test results and hope to hear something by Tuesday. This was a follow up to a scan we had done in the NICU that should he had calcium deposits in his kidneys from the TPN. We started new speech and OT therapy and hope that we can get Carter to liking food soon. He does have minor allergy issues which have required us to try numerous allergy meds. Right now we are on a nose spray but while we were on liquid meds we were able to get him to take more by mouth which has been a bust lately. We may consider trying periactin to help boost his appetite but still toying with the idea.
Riley has a few appointments coming up. The one we can't hardly wait to get to is the eye doctor. His glasses are becoming too small again (only 6 months old) and he does not want to wear them as much since they hurt his face. Only two more weeks til this appointment! Lets hope they stay in one piece til then.
The Cribs...it only took a week and we got the new ones around July 12. Took apart the old cribs and returned them to Target. After about twenty minutes, got my store credit on the full purchase price of the cribs. Once you explain that you don't need a receipt and it says it on Target's website that recalled items do not need one - you are good to go. Unfortunately, we did travel their on a weekend where staff was limited but the woman behind the counter just started to do the return as normal and once the code was entered the screen politely explained to her what exactly she needed to do to refund my money. The best Target return I ever did except for the fact I had to get store credit.
I will post pics soon. This is the second day I have had the internet back up a running. The storms last week crippled my internet connection and prior to that my laptop when kaplooee. Thanks to my brother for getting me back up and running.
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